Rare Labs

Personalized Oligonucleotide Therapy

Pioneering Personalized Genetic Therapy

Rare Labs develops individualized antisense oligonucleotide (ASO) therapies for patients with ultra-rare genetic diseases. Our secure patient portal provides transparent access to your therapy development journey, medical information, and care team.

Comprehensive Patient Care Platform

HIPAA-Compliant Portal
Secure access to your medical records, genetic testing results, and therapy documentation with multi-factor authentication and role-based access control.
Secure Messaging
End-to-end encrypted communication with your clinical team. Send messages, share files, and receive priority support when you need it most.
Therapy Tracking
Real-time visibility into your personalized therapy development progress from evaluation through treatment, with milestone notifications.
Document Management
Securely upload, store, and share medical documents with version control, digital signatures, and encrypted downloads.
Appointment Scheduling
Book consultations, follow-ups, and telehealth visits with calendar integration and automatic time zone management.
Caregiver Access
Grant secure proxy access to family members and caregivers with customizable permission levels for viewing and managing care.

Healthcare Providers

Refer patients who may benefit from personalized ASO therapy through our secure physician referral portal with NPI validation and status tracking.